Recent content by Dubbya_B

  1. Dubbya_B

    PAS years after stopping?

    Hello and sorry for the late reply. Being that there is almost no understanding of the underlying cause of PAS, it is difficult to say if you began experiencing this condition years after cessation. There is a chance that a withdrawal effect is at play. That is, after the effects of Accutane...
  2. Dubbya_B

    How to protect yourself from sexual dysfunction side effect of Accutane

    The best way is to stop taking Accutane. No one here will condone the use of the drug. It may or may not be too late once you begin to notice symptoms. For some, like myself, the worst of the side effects started soon after quitting. There is also no evidence that sexual dysfunction from...
  3. Dubbya_B

    PFS has altered neurohormone levels and 5AR2 methylation alterations (studies). PAS might too.

    A spinal tap to test for levels of obscure hormones for an unverified condition might require the approval of an ethics board. It's a painful and potentiallly dangerous procedure, unlike a simple blood test. I doubt any doctor would perform this outside of a study. It sucks. Ethics boards stand...
  4. Dubbya_B

    Is anybody home?

    Very true about low visibility of this forum. I had published to google about a year ago, but it is still low on the search results for most post-Accutane related searches. If you would, could you please participate in the post-drug symptoms survey at propeciahelp also.
  5. Dubbya_B

    PFS has altered neurohormone levels and 5AR2 methylation alterations (studies). PAS might too.

    This would most likely need to be done in the context of research. There is no test available to clinicians to perform such a procedure.
  6. Dubbya_B

    Is anybody home?

    Thanks for reporting in. It seems the last 15 members who tried to join were simply spambots, according to the forum's spam-block software. Between the poor participation on this site and relative lack of PAS members participating on propeciahelp, it appears this really is an extremely rare...
  7. Dubbya_B

    Is anybody home?

    Are there any PAS patients still reading this forum?
  8. Dubbya_B

    Post-Drug Patient Survey Launched at Propeciahelp

    So far, there have only been 21 submissions from PAS patients. There are regularly five or more lurkers on this forum. If you have been sitting on the sidelines suffering from this condition in silence, please step-up and take action in some way! At this time PAS is practically untreatable...
  9. Dubbya_B

    Possible opportunity for genital neuropathy testing of PAS/PRSD

    Dr. David Healy and an acquaintance of his at Sheffield hospital in the UK planned on performing a test of genital nerve conductance with 6 patients from each patient group of PFS, PAS, and PSSD. Unfortunately, the manufacturer of the Sudoscan device they were planning to use has refused to...
  10. Dubbya_B

    Post-Drug Patient Survey Launched at Propeciahelp

    Results are now available for viewing here. The report is regenerated daily as surveys are completed. There will be more reports coming in the future to describe these conditions in greater detail. Stay tuned. Not a surprise that there appears to be a strong overlap in the main symptoms and...
  11. Dubbya_B

    Litigation against Accutane/Isotretinoin manufacturers in the UK

    Yes, it would be a huge step forward, but only one PAS sufferer from the UK has come forward thus far.
  12. Dubbya_B

    Litigation against Accutane/Isotretinoin manufacturers in the UK

    Nothing as of yet. Unfortunately, there is not enough activism among members of the PAS community in the US to spark such interest. In addition, there are special legal protections granted to generic manufacturers according to the US Supreme Court, allowing them to escape responsibility so long...
  13. Dubbya_B

    Litigation against Accutane/Isotretinoin manufacturers in the UK

    Members of the “parents of PAS patients” activist group in the UK, including Derek Jones (who made the “Dying for Clear Skin” documentary after losing his son to PAS), are reaching out to solicitors regarding legal action against RoAccutane/Isotretinoin manufacturers for failure to warn patients...
  14. Dubbya_B

    THEORY - PAS and Dopamine Theory - (Negative Symptoms of Schizophrenia) - Plausible/Difficult to Treat/Testable

    This may be a link between both the the "loss of AR signalling" and "loss of 5-ar I expression" theories of PFS/PAS discussed on this forum and symptoms of negative schizophrenia some of us experience: T. Aubele and M. F. Kritzer, “Androgen Influence on Prefrontal Dopamine Systems in Adult...