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  1. Dubbya_B

    Is anybody home?

    Thanks for reporting in. It seems the last 15 members who tried to join were simply spambots, according to the forum's spam-block software. Between the poor participation on this site and relative lack of PAS members participating on propeciahelp, it appears this really is an extremely rare...
  2. Dubbya_B

    Is anybody home?

    Are there any PAS patients still reading this forum?
  3. Dubbya_B

    Post-Drug Patient Survey Launched at Propeciahelp

    So far, there have only been 21 submissions from PAS patients. There are regularly five or more lurkers on this forum. If you have been sitting on the sidelines suffering from this condition in silence, please step-up and take action in some way! At this time PAS is practically untreatable...
  4. Dubbya_B

    Possible opportunity for genital neuropathy testing of PAS/PRSD

    Dr. David Healy and an acquaintance of his at Sheffield hospital in the UK planned on performing a test of genital nerve conductance with 6 patients from each patient group of PFS, PAS, and PSSD. Unfortunately, the manufacturer of the Sudoscan device they were planning to use has refused to...
  5. Dubbya_B

    Post-Drug Patient Survey Launched at Propeciahelp

    Results are now available for viewing here. The report is regenerated daily as surveys are completed. There will be more reports coming in the future to describe these conditions in greater detail. Stay tuned. Not a surprise that there appears to be a strong overlap in the main symptoms and...
  6. Dubbya_B

    Litigation against Accutane/Isotretinoin manufacturers in the UK

    Yes, it would be a huge step forward, but only one PAS sufferer from the UK has come forward thus far.
  7. Dubbya_B

    Litigation against Accutane/Isotretinoin manufacturers in the UK

    Nothing as of yet. Unfortunately, there is not enough activism among members of the PAS community in the US to spark such interest. In addition, there are special legal protections granted to generic manufacturers according to the US Supreme Court, allowing them to escape responsibility so long...
  8. Dubbya_B

    Litigation against Accutane/Isotretinoin manufacturers in the UK

    Members of the “parents of PAS patients” activist group in the UK, including Derek Jones (who made the “Dying for Clear Skin” documentary after losing his son to PAS), are reaching out to solicitors regarding legal action against RoAccutane/Isotretinoin manufacturers for failure to warn patients...
  9. Dubbya_B

    THEORY - PAS and Dopamine Theory - (Negative Symptoms of Schizophrenia) - Plausible/Difficult to Treat/Testable

    This may be a link between both the the "loss of AR signalling" and "loss of 5-ar I expression" theories of PFS/PAS discussed on this forum and symptoms of negative schizophrenia some of us experience: T. Aubele and M. F. Kritzer, “Androgen Influence on Prefrontal Dopamine Systems in Adult...
  10. Dubbya_B

    THEORY - 5ARI Withdrawal Syndrome

    Well, good luck to you sir. I don't think a month of vitamin A deprivation will seriously harm you or anything, but doubt it's good for you. Remember to report any positive or negative results.
  11. Dubbya_B

    THEORY - 5ARI Withdrawal Syndrome

    No, it's idiotic. The theory behind the zero-A diet is rooted in a conspiracy theory and the unsubstantiated presumption of prolonged storage of retinoids after Accutane treatment. Total depletion of vitamin A has been proven to have adverse health effects. Found this today while surfing...
  12. Dubbya_B

    THEORY - 5ARI Withdrawal Syndrome

    @BD_Acc was right, only mis-stated by a couple words: It's saying the androgen signal got down regulated because of normal androgens with up-regulated receptors.
  13. Dubbya_B

    Dubya_B Lab Results

    No dietary changes during the 3 times I had DHT tested. I was eating on the healthier side with a meat (beef, pork, fish, chicken) carb (rice or potatoes) and veggie for dinner. Would have leftovers from dinner for lunch the next day. Usually had a doughnut or sausage muffin for breakfast. Very...
  14. Dubbya_B

    Post-Drug Patient Survey Launched at Propeciahelp

    You're welcome Flynn! Anyone reading this, please participate in the survey! Apparently, there have been quite a few submissions from PFS, PSSD, and post-Lupron patients, but for some reason, very few PAS patients have completed the survey.
  15. Dubbya_B

    Post-Drug Patient Survey Launched at Propeciahelp

    A new post-drug patient survey has launched on propeciahelp.com. https://forum.propeciahelp.com/t/post-drug-syndrome-survey-faq-survey-now-live-please-participate/34482 This survey system was created to help characterize the condition(s) that have come to be called PFS, PAS, and PSSD, along...
  16. Dubbya_B

    FDA Petition to Add Sexual Side Effects to Accutane Drug Label

    Update: I spent the morning of December 21st in front of the FDA HQ with a sign that read "1/3 of Teens Reporting Sexual Side Effects Took Accutane, These Effects Can be Permanent, But the FDA Doesn't Care About Ruined Lives", so they are well aware of this issue. There seemed to be quite a few...
  17. Dubbya_B

    PAS Discussed in Daily Mail Article

    A victim of PAS discusses long-term depression and sexual dysfunction since he took Accutane: https://www.dailymail.co.uk/health/article-6431453/Thousands-prescribed-Roaccutane-theres-disturbing-evidence-leave-men-suicidal.html There are also several other recent events mentioned in the...
  18. Dubbya_B

    FDA Petition to Add Sexual Side Effects to Accutane Drug Label

    ...Just another plea to comment. 7 comments so far and only 3 are from US citizens. I am planning on protesting the FDA's refusal to recognize sexual side effects this winter. Please support this initiative to have sexual side effects added to the drug label in any way you can.
  19. Dubbya_B

    FDA Petition to Add Sexual Side Effects to Accutane Drug Label

    Thanks Flynn! No one else? Only 3 comments so far. This is a shame that barely anyone seems to care enough about getting sexual side effects recognized to bother typing-up a short message on a government website. https://www.regulations.gov/docket?D=FDA-2018-P-4088